tag:blogger.com,1999:blog-2580877985094646850.post9063268968295160442..comments2024-03-25T23:29:11.804-07:00Comments on Sugar and spice....wish all things were nice.: Talk T1Partha Karhttp://www.blogger.com/profile/08181085644187624720noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-2580877985094646850.post-91640745253210987142016-01-21T07:06:37.012-08:002016-01-21T07:06:37.012-08:00And education to use the cgm Andrea. I am self-tau...And education to use the cgm Andrea. I am self-taught on cgm, and it's become the reason why my daughter currently meets the NICE target. But I'm sure if I knew more about how to interpret the data and respond to it, I'd be able to achieve this without the levels of burnout I get periodically, and which I'm so worried will become my daughter's eventual burden.Actually Mummy...https://www.blogger.com/profile/06425476163374667083noreply@blogger.comtag:blogger.com,1999:blog-2580877985094646850.post-4214568645435850932016-01-18T06:01:35.263-08:002016-01-18T06:01:35.263-08:00As an active parent within the T1 Community I'...As an active parent within the T1 Community I'm still astounded by the post code lottery. It's always disappointing to see that funding is not available for the very best technology, as a blogger I carried out a survey recently on the things that seem to impact HBA1C for children. The results were all very interesting, I compared Pumps vs Mdi, also the roll of CGM, but perhaps the biggest thing that I noticed was education plays a key roll. Over 300 parents participated in the survey from all over the UK the most amazing thing to see was the average hba1c across the board was 7.8% which you'll be aware is lower than the national average, I put this down to the fact that the one thing these parents had in common was they were all members of facebook support groups, these are people that are proactively trying to learn as much as they can to try and manage this condition....the cgm results were also very interesting...I strongly believe the NHS needs to look at funding these for more children in order to meet new NICE guidelines. Yes not all parents are capable of interpreting the data and using them to their full potential...however imagine what could be achieved if those parents who could, had the choice to use one.Anonymoushttps://www.blogger.com/profile/08698017275779614636noreply@blogger.com